Children and Youth with Special Health Care Needs
Program
Overview
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Resource Centers
Five Regional Centers and the
Great Lakes Intertribal Council’s
Children and Youth with Special Health Care Needs Project are dedicated to
supporting families with children and youth with special health care needs and
the providers who serve them. Wisconsin First Step is a 24-hour hotline staffed
by Parent Specialists with access to an extensive online directory of community
services.
Family Partnerships
Family Voices of Wisconsin and Parent to Parent of Wisconsin are key parent
support organizations who advise and collaborate with the Children and Youth
with Special Health Care Needs (CYSHCN) Program to strengthen parent leadership,
support and training.
Newborn Screening
The Wisconsin Newborn Screening Program oversees the screening
of infants for nearly 50 disorders, helping to assure that newborns are
diagnosed and treated for a variety of preventable conditions present at birth.
Hearing Screening
Wisconsin Sound Beginnings promotes universal newborn hearing
screening and follow-up including the parent support program, Guide by Your
Side. The WE-TRAC data system supports a coordinated system of screening and
early intervention by no later than 6 months of age.
Birth Defects Prevention
The Wisconsin Birth Defects Prevention and Surveillance Program
maintains a confidential registry to collect and monitor information about birth
defects, coordinates a statewide referral system, initiates prevention
activities and promotes access to services.
Medical Home Initiative
The Program supports health care quality improvement focused on
strengthening patient-centered Medical Homes throughout the state with resources
like the Wisconsin Medical Home
Toolkit.
Connections Initiative
Wisconsin Medical Home Autism Spectrum Disorders (ASD)
Connections Initiative promotes improved services and supports for children with
ASD families through a Community of Practice on ASD, outreach, and training.
Last Updated: February 17, 2009 |
